Volume 22, Issue 2, 2000

The Brain Tumour Foundation of Canada: The role of facilitators for its support group

Katheleen M. Ellis, Executive Director, BTFC

Abstract

The mission of the Brain Tumour Foundation of Canada is to fund brain tumour research, to provide patient and family support services, and to educate the public. The focus of this paper is on the role of support groups. Support groups are an important resource to support individuals with brain tumours and their families. There is an ongoing need for qualified professionals to act as facilitators for these groups. Neuroscience nurses are uniquely qualified for this role.

AXON, 22(2), 10–12.

Multiple sclerosis in childhood: Understanding and caring for children with an “adult” disease

Jennifer R. Boyd, RN, BScN, MHSc, CNN(C), and Lynn J. MacMillan, RN, REPT, CNN(C)

Abstract

Multiple sclerosis (MS) is rare in childhood but may occur more frequently than originally believed. In light of the complex nature of MS, the expanding availability of new MS treatments, and the developmental needs of pediatric patients, multidisciplinary care of pediatric patients with MS is a necessity. Our review of MS in childhood aims to increase the awareness of neuroscience nurses about MS in children and adolescents, and to expand the knowledge of pediatric nurses concerning this “adult” disease. Our experience in developing a multidisciplinary pediatric MS clinic that addresses both health and developmental needs of children with MS is presented and discussed. The nurse’s role in the care of these children and their families through assessment, support, education, advocacy, referral and coordination of care is emphasized.

AXON, 22(2), 15–21.

The context, content and consequences of mothering a child with disabilities

Judy Chisholm, RN, MN, CNN(C)

Abstract

Due to recent advances in biomedical science and technology, infants and children with complex medical needs and disabling conditions are surviving and being cared for at home more than ever before. Sociocultural influences and economic policies place mothers in the home as primary caregivers of children. Their caregiving work is largely invisible. The information provided in this paper is intended to make the work of mothering a child with disabilities more visible while alerting nurses to the impact of this trend on mothers. Strategies to minimize the negative consequences are included.

AXON, 22(2), 22–28.

What to do about flat heads: Preventing and treating positional occipital flattening

Susan Neufeld, RN, MN, and Stephanie Birkett, RN

Abstract

Across Canada there has been an increasing incidence of positional occipital flattening. This increase appears to be related to the recent change in infant sleep position to supine. In this paper, two patterns of positional occipital flattening, positional plagiocephaly and positional brachycephaly, are outlined. While there is no evidence of long-term developmental or neurological problems that result from positional occipital flattening, the infant’s appearance can be distressing to parents who will then seek treatment. Prevention of positional occipital flattening requires a community approach with timely screening and early intervention should the infant’s skull appear flat. Treatment involves repositioning the infant coupled with physiotherapy if there is neck muscle involvement. Should repositioning alone be ineffective, a helmet or headband program may be implemented. Neuroscience nurses can work in partnership with the community to ensure prevention strategies are implemented and timely interventions initiated.

AXON, 22(2), 29–31.

Questions:

Please visit the contacts section for a list of the current Executive, Committees, and Regional Councillors.

If you have a question/comment on the web page or a general CANN inquiry please email CANN Communications + Marketing.